Patient Stories
Your lives with thyroid eye disease
Louise saw her GP and an optician, neither of them recognised the early symptoms of her thyroid eye disease
Louise tells us that even though she has had surgery to lesson the visual impact of her TED she is still impacted psychologically by the disease.
Julia is awaiting a surgery date, and has been waiting for more than 18 months
Julia says she’s been through a traumatic experience without much help and that you have to help yourself by learning as much as you can about thyroid eye disease.
Victoria had to self diagnose her TED and feels there isn’t enough support
Victoria talks candidly about how self-conscious thyroid eye disease makes her feel, to the point where she doesn’t look in the mirror or like people see her up close.
Paula’s says TED is a lonely disease, but the TEDct community helped enormously
Paula had a long road through TED including decompression surgery, but she recovered and feels she is virtually back to her ‘pre-TED’ self. Her experiences motivated her to get involved with TEDct and she was a valued TEDct volunteer for many years.
Lynne tells us how changing her diet helped her with her Graves’ and TED
Lynne did the talk in this video for a TEDct patient information event a few years ago. She found that changing her diet had a beneficial effect on her Graves and TED.
Latest News
In Memory of Caroline Parkinson
We are saddened to share the news that Caroline Parkinson passed away on Tuesday, 4 March 2025. Caroline was an active and valued member of the TEDct community.
Online Learning Module on Thyroid Eye Disease
Rebecca Ford, consultant ophthalmologist and Chair of TEDct, has developed an online learning module on thyroid eye disease (TED) for healthcare professionals, hosted on MIMS.
TEDct at SfE BES 2025!
We’re delighted to share that TEDct will be exhibiting at SfE BES 2025 — the largest gathering of endocrine professionals in the UK.