Patient Stories
Your lives with thyroid eye disease
Bilal had been ill several times with various viral infections, so went to his physician for a blood test.
“I was feeling incredibly tired at the gym, my right eye movement was lagging behind my left”
Louise saw her GP and an optician, neither of them recognised the early symptoms of her thyroid eye disease
Louise tells us that even though she has had surgery to lesson the visual impact of her TED she is still impacted psychologically by the disease.
Victoria had to self diagnose her TED and feels there isn’t enough support
Victoria talks candidly about how self-conscious thyroid eye disease makes her feel, to the point where she doesn’t look in the mirror or like people see her up close.
Paula’s says TED is a lonely disease, but the TEDct community helped enormously
Paula had a long road through TED including decompression surgery, but she recovered and feels she is virtually back to her ‘pre-TED’ self. Her experiences motivated her to get involved with TEDct and she was a valued TEDct volunteer for many years.
Lynne tells us how changing her diet helped her with her Graves’ and TED
Lynne did the talk in this video for a TEDct patient information event a few years ago. She found that changing her diet had a beneficial effect on her Graves and TED.
Latest News
TEDct Commissions New Open-Access Clinical Guide on Thyroid Eye Disease
The Thyroid Eye Disease Charitable Trust (TEDct) is proud to announce the publication of a major new open-access clinical textbook.
TED Patient Event: Global Success
The TED Patient Day on 5 September 2025 was a global success. Organised with the British Thyroid Foundation, TEDCt and The Thyroid Trust, it provided vital information and support. Further details can be found here.
TEDct at EUGOGO 2025
TEDct was proud to sponsor and attend EUGOGO 2025, connecting with the British Thyroid Foundation and global experts while being honoured to take part in discussions shaping patient-centred care for Thyroid Eye Disease (TED).