Patient Stories

Your lives with thyroid eye disease


Paula’s says TED is a lonely disease, but the TEDct community helped enormously

Paula had a long road through TED including decompression surgery, but she recovered and feels she is virtually back to her ‘pre-TED’ self. Her experiences motivated her to get involved with TEDct and she was a valued TEDct volunteer for many years.

Lynne tells us how changing her diet helped her with her Graves’ and TED

Lynne did the talk in this video for a TEDct patient information event a few years ago. She found that changing her diet had a beneficial effect on her Graves and TED.

Julia’s journey is ongoing and is a candid account of life with TED

It took a long time for Julia to be diagnosed with both Graves’ disease and thyroid eye disease and her journey has been difficult, and is ongoing but she remains positive.