Paula had a long journey with Thyroid Eye Disease. Now she is using her experience to help at TEDct and support others whose lives are affected by the disease.
"I am Paula Fogg and I live in North Weald in Epping Essex. I am 45 years old, married with a daughter, and have been a Committee member of TEDct now for approximately three years.
Having suffered with Graves’ disease and Thyroid Eye Disease myself I felt I could support fellow suffers as I really understood what people were going through. It is a lonely disease that is both mentally and physically damaging.
It took a long time before I was diagnosed with Graves’ disease; my eyes were protruding, the right eye being worse; I was blacking out in hot rooms and felt generally unwell. After three years I had 95% of my thyroid removed followed by orbital decompression on both eyes 4 years later, thanks to Moorfields Eye Hospital.
The operation was the best thing I could have done and my appearance is almost back to pre-TED, only it was a long and painful journey. I am lucky and my thyroid levels have been level for around 5 years now. I still suffer slightly with my eyes but no where as much as I did.
So, how do I help TEDct? I assist with the helpline and talk to anyone that needs support or simply wants to hear my experience. I can't offer medical advice but am always pleased to hear from fellow sufferers and hope my positive story can offer light at the end of the tunnel. I also worked on coordinating our new website and carry out small administrative tasks now and then.
I hope you find TEDct useful and supportive and look forward to seeing you at one of the patient information meetings one day.
All the best,