Information and support
for Thyroid Eye Disease

Helpline & support: 07469921782,

Latest news and events

Patient Information Meeting (NEW)

Date: Saturday, 3rd March 2018 at 2.00pm (Registration 1.30pm) Venue: Moorfields NHS Foundation Trust, CTC Education Centre, 2nd Floor, 15 Ebenezer Street, London, N1 7NP. 

All attendees MUST REGISTER BY 5pm on Wednesday 28th February

Anyone wishing to attend (names of friends and relatives included) must notify TEDct by phone on 07469921782 or by email to Please put "TEDct Patient Information Meeting" in the subject line of your email.  This is for security reasons and the venue requires this information before the event. Early notification would be appreciated. Doors will be closed at 2pm.

New TED videos - watch now on YouTube 

A number of videos were recorded at the previous PIM, including professional and patient perspectives on the care and treatment of people with TED. Click here to watch.

Our Helpline phone number has changed

You can now call us on 07469921782 or email us with your contact number and someone will respond.

New clinical guidelines for TED

Unfortunately, far too often TED is undiagnosed for several months, or misdiagnosed, denying patients treatments that make a difference. New clinical guidelines were published in 2015 to improve the care of patients with TED, with regards to diagnosis, treatments and specialist care. Read more

Vacancy for Newsletter Editor – voluntary

You could help make a big difference for people affected by TED. We are currently looking for an editor of our quarterly members' newsletter.  Find out more about the position and how to apply

Join us

We connect to hundreds of people concerned with TED and provide information and support. Yearly membership is just £12.

Membership benefits:

  • Connect to other members
  • Quarterly newsletter
  • Invitation to every TEDct event
  • Additional TED information
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